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Showing posts with label 90% benign. Show all posts
Showing posts with label 90% benign. Show all posts

BE A WARRIOR!

So it has been two months since my craniotomy and I can honestly say I have come a long way both physically and emotionally!  I am about to celebrate my birthday at the end of this month and I am eternally gratefully to G-d, the Universe, whoever is in charge!  Even though I am not currently working, I am happy in having the time and health to have taken up my "mom duties" again!  Somehow, I had lapsed in this department.  Not only was I working full-time, an hour away, somehow, I had grown apathetic and aloof.  I don't know if I can blame it on my brain tumor but having survived one, I can definitely say, changed my life's perspective.

It is okay if I have to be in long car lines two times a day times two kids and it is okay if I have to go to the grocery store three times a week or pick up every shoe thrown around the house. I can appreciate those priceless moments, when my son tells me "Mommy, you are the best mom ever," when I know I am not.  I recognized that we don't have "forever."  I mean, I knew this as I experienced the death of my mom, many years ago but somehow, when you go through a life-altering experience, it hits home in a way that nothing else does.

I am also grateful to have found a group online of women (and some men)   https://www.facebook.com/groups/56743583446/  to ask questions when in doubt.  Things I wonder like, how long is my head going to feel numb?  And what others reactions were to steroids.  P.S. I can honestly say that coming off of steroids was one of the worst experiences!

All in all, I realized that I was extremely lucky in having had a Grade 1 tumor (benign.)     I remember standing in front of the mirror and seeing my head open (as my incision re-opened during a setback) and crying, not because of my scar, but because I imagined the heartache my mom and so many others went through having the knowledge that they would die. As a mother now, I understand the absolute grief of the thought of leaving your family behind. There are thousands of people each day who are faced with death, whether it be cancer or a tumor etc.. and I, well, I am the lucky one.  And so are you, if you are reading this.  You have another day in your life to make a difference, to fight, to be a warrior.  Take it!




THE OUTCOME - SURVIVING A BRAIN TUMOR

Well, I am happy to report that I am back to blogging after successful brain surgery on Dec. 3, 2013. I was so non-chalant about it as I went into it, that now sitting back and reflecting upon it three days later, all I can say is "WOW!"  I had my operation at Jackson Memorial/University of Miami with one of their top neurosurgeons.

I got extremely lucky that somehow my primary care physician knew this surgeon personally and placed a call for me. I am forever grateful for that as well.

I was sent home ONE day after brain surgery for the removal of a meningioma.  Oh! and I also had to have an embolization procedure. (An embolization involves threading a thin tube (catheter) up the leg veins or arteries directly into the blood vessels that feed the tumor. Then a glue-like clotting substance is injected to choke off and shrink the tumor.)  In my case, they went up the groin area, and I was pretty much awake.  This was not any fun at all!  I kept asking for more "twilight" medicine, so I would not hear and see the procedure, but no luck! it was the weirdest feeling ever to feel a wire going up my body and up to my brain.  I am sorry, I know that sounds horrible reading it, but just imagine me, half-awake as they did the procedure!




I am eternally grateful for the outcome.  The tumor in my brain, behind my left eye was in a location that thankfully, was relatively easy to remove. The surgeon said that it is most likely Grade 1 Benign: these are very slow-growing tumors and account for 75 percent of all meningiomas.)  I will still have to wait for the pathology report but, it is benign according to the surgeon. I was very, very blessed that this MENINGIOMA was operable and benign and easily accessible.  

I cannot even begin to express the gratitude. I know there will be many more bumps in the road of life but at least I know this is a pretty huge one I just crossed!  I am very happy with the outcome and just want to let you know, in case you are randomly searching the internet and researching, "What is a meningioma" and sharing a success story.